Learn More about BWS
The following are links to popular BWS resources for Families and Providers
Online Beckwith-wiedemann Syndrome/BWS Resources**
BWCFI - Beckwith-Wiedemann Children's Foundation International website
BWCFI YouTube Channel - videos with medical professionals and researchers
Center for Beckwith-Wiedemann Syndrome, Nicklaus Children's Hospital website
Children's Hospital of Philadelphia/CHOP website
FACEBOOK Pages/GROUPs:
Beckwith Wiedemann Syndrome main support group for families and those with BWS
Beckwith Wiedemann Syndrome Awareness Group
BWS Ask the Expert Medical Group
BWCFI Beckwith Wiedemann Children's Foundation International, Facebook Page
Adults/Teens Living with BWS Coffee Group
Adoption Support Group: Adopted and loved: BWS and Childhood Cancer
BWS Awareness Day, Facebook Page
Campaign Planning for BWS Awareness Day Group
BWS Never Alone, Facebook Page
Larger Than BWS, Facebook Page
Additional resources:
Lactation Support for Macroglossia
ORganizations we partner and collaborate with:
BWCFI - Beckwith Wiedemann Children's Foundation International
Global Genes - Allies in Rare Disease
UHCCF United HealthCare Children's Foundation - Medical Grants Available, by application
****To add your link or partner with us, contact us today!****